Euro Ewing Consortium

International Clinical Trials to Improve Survival from Ewing Sarcoma

EEC Patient Expert representation at the Childhood Cancer International conference – April 2016

Chris Copland, a patient expert from the UK represented the EEC at a European-wide conference organised by Childhood Cancer International (CCI) which is an international patient support organization for childhood cancer. Chris has written about his experience at the conference.

" The Childhood Cancer International (CCI) European conference, this year in Belgrade, was, as always, a very worthwhile event. I had the opportunity to present a poster there about the EURO EWING Consortium and distribute a corresponding set of leaflets. With companions from Unite2Cure, I presented on the campaign to reform the Paediatric Medicines Regulation as it approaches its 10 year review. One of the examples we gave of how the Regulation fails children with cancer was the cancellation of a Paediatric Investigation Plan into the benefit of an IGF-1R inhibitor for children with Ewing sarcoma after the corresponding trial in adults had failed. On the final day, a film was shown about the youngest beekeeper in the Netherlands, a young girl who also happened to have bone cancer. Do spare fifteen minutes to watch this uplifting film. You can read my full blog on the conference and read the official Unite2Cure report.

Chris Copland, EEC Patient Expert (UK)

C Copland with EEC poster at CCI conference 2016