Euro Ewing Consortium

International Clinical Trials to Improve Survival from Ewing Sarcoma

News and events

Ewing Spring Meeting 2018,  Monday and Tuesday 12th/13th March 2018 in Essen.

  1. Agenda: Tentative agenda is from noon, 12th March to noon, 13th March. A draft of the agenda will be sent soon.
  2. Venue: The meeting will take place on the University of Essen Campus, Hohlweg 8, 45147 Essen, Room 43.0.026 (ground floor).
  3. Registration for meeting and working dinner: Please complete the registration form and return it to ewing@uk-essen.de no later than Friday, 26th January.
  4. The form includes a section for the working dinner on 12th March. confirm if you plan to attend.
  5. Hotel: The suggested hotels are within walking distance (up to 30 min.) to the meeting.

Any additional correspondence regarding organizational issues should be directed to ewing@uk-essen.de.

Musculoskeletal Pathology Course 2018 - April 16-20 Bologna

The Course consists of a 5-day update on management of bone and soft tissue tumors with particular emphasis on clinico-pathologic and radiographic correlations including practical studies under microscope. It is addressed to orthopaedic surgeons, oncologists, pathologists, radiologists and basic researchers to improve their knowledge and competence in these pathologies by working in multidisciplinary teams. The format includes interactive sessions for questions, case presentations and an early morning interactive session of multiple choice questions reviews the topics previously discussed. The last day participants are grouped in multidisciplinary teams to discuss a clinical case. The best teams are awarded a prize. Register at http://www.adarteventi.com/

When Chris Copland met Jeff Toretsky

In October 2017, Chris Copland, EEC patient advocate flew to Washington DC to speak at the SIOP conference about the campaign on age of entry to trials. He made a detour to meet and interview Jeff Toretsky, Georgetown University to find out more about his research into a drug to target Ewing sarcoma cells.

" It is Columbus Day, a public holiday in Washington DC, but Jeff Toretsky has been at work for several hours by the time he ushers me into his lab at Georgetown University.......... read more

Next EEC meeting - 17 - 18 January 2018

The next EEC meeting will be held at Friends House, Euston Road, London.

Paper published in JCP by Ornella Gonzato, EEC patient expert

Ornella Gonzato, an EEC patient expert based in Italy has written a paper on the patient perspective on access to innovative drugs and how access should not just be limited to patients with the more common cancers. She discusses the issues, interdependencies and risk-sharing. She summarises that the ‘core driver’ from the patient point of view is that: “When you are faced with a rare cancer, you really can’t wait.” The paper is called ‘The new risk-sharing paradigm in rare cancers: Patient perspective’ and was published in the Journal of Cancer Policy.

Next EEC Meeting - 22 June 2017

The next EEC meeting will be held at the Hallam Conference Centre – 44 Hallam Street, London W1W 6JJ on the morning of Thursday 22 June 2017. Also being held at this venue will be the European Bone Sarcoma Network Meeting on Wednesday 21 June and the 2nd International Consensus Meeting on Local Therapy for Ewing Sarcoma (Thursday 22 to Friday 23 June 2017).

Please register online at https://www.eventbrite.co.uk/e/london-bone-sarcoma-2017-tickets-31483492975.

Agenda (pdf)

Thursday evening menu (pdf)

Bone tumour course - October 2017, Leiden

A multidisciplinary approach to the diagnosis of bone tumours

9 - 11 October 2017, Leiden, The Netherlands

Register at www.boerhaavenascholing.nl

For more information email boerhaavenascholing@lumc.nl

Young researcher presentations at the EEC meeting in January 2017, funded by the Peter Pan charity

Six young researchers from Europe, working on Ewing sarcoma, were awarded travel bursaries to attend the EEC meeting in London in January 2017. Funding was donated by the Peter Pan charity and was granted for two spoken presentations and four posters. The EEC were very impressed with the standard and glad that it had been a positive experience for the young researchers.

Call for applications from young researchers to attend EEC meeting in London - deadline Sunday 20 November 2016

The Peter Pan charity is again funding young researchers working on ES in Europe to attend and present their research at the January EEC meeting. Applications must be returned by Sunday 20 November 2016.

Next EEC meeting - 18-19 January

The next EEC meeting will be held at Friends House near Euston, London. The agenda will include workshops on 'Developing a strategy for future European cooperation in ES research' and 'Delivering new agent studies in EEC' as well as an opportunity to hear updates on the progress of the project and new study proposals.

13 July 2016

Young reseachers from Europe presented at the EEC meeting in July in Brussels. They were funded to attend and present their results through a generous donation from the Peter Pan charity in Italy.

22 April 2016

Chris Copland, a patient expert from the UK presented a poster on the role of patient experts in the EEC at the Childhood Cancer International (CCI) conference in Belgrade in April 2016.

Next EEC Meeting

Wednesday 13 July at the EORTC, Avenue Emmanuel Mounier, 83/11, Brussels 1200, Belgium. Agenda to follow. Starts at 10:00, ends at 16:30.

Young researcher travel awards scheme for July 2016 is now closed. A call for applications for 2017 will be announced in December 2016.

Apply by 8 May 2016 to present at EEC meeting in July 2016.

Travel, hotel and subsistence expenses are available to successful applicants.

Register by 31 March 2016

7th Joint IOR/MSKCC/HSS XXIX Course on Musculoskeletal Pathology
11-15 April 2016
Centro di Ricerca Codivilla-Putti
Istituto Ortopedico Rizzoli
Via di Barbiano 1/10, Bologna – Italy

EEC are supporting Unite2Cure in their campaign to improve access to new drugs for trials in young people

The EURO EWING Consortium supports the Unite2Cure campaign to change European Paediatric Medicine Regulation as there is a need for better access to allow testing of new treatments for rare cancers like Ewing sarcoma, that mainly affect young people. Survival rates have not improved for 25 years and so new drugs and innovative trials are needed to make sure that more people are cured from this rare cancer.

To sign the petition go to http://unite2cure.org/sign-the-petition/

Next EEC Meeting

Wednesday and Thursday 2-3 December 2015 at Friends House, 173-177 Euston Road, London, NW1 2BJ.

25 September 2015

Patient experts Chris Copland, Ornella Gonzato and Lindsey Bennister will be giving their perspective on 'how to construct and perform informative bone sarcoma trials if and when a new drug emerges' at the 3rd European Bone Sarcoma Networking Meeting in Vienna, Austria

Summary of the meeting

24 August 2015

Our search for patient experts to help with EEC research has been publicised in the Sarcoma UK Connect newsletter on p14

27 July 2015

A Q&A article written by Chris Copland (patient/carer expert for the EEC) has been posted on the Childhood Cancer International (CCI) website

24 July 2015

Congratulations to the team in France who have now opened Euro Ewing 2012 and recruited their first patient to the trial.

24 - 25 September 2015

EEC Partners are holding a joint workshop with members of ENCCA WP7, EuroSarc and PROVABES at the 3rd European Bone Sarcoma Networking Meeting in Vienna, Austria

10 June 2015

EEC Partners will meet in London to discuss progress with the two trials - Euro Ewing 2012 and rEECur

4 March 2015 - First patients recruited to Euro Ewing 2012 trial in Spain

Congratulations to the Spanish investigators and trial team who opened Euro Ewing 2012 at the first site in Spain yesterday and recruited the first two patients today.

23 February 2015 - The Sarcoma UK 2015 grant call is now OPEN 

The research allocation for the 2015 grant round is £350k

DEADLINE FOR APPLICATIONS: 5pm, Thursday 26 March 2015

Large grants are capped at £120,000, small grants in the region of £25,000, up to £50,000

Submissions will be accepted from Principal Investigators and Clinicians working in higher educational institutions or specialist treatment centres in the UK.

More information: http://www.sarcoma.org.uk/researcherinfo

29 January 2015 - First patient recruited to the rEECur trial

Congratulations and thanks for your hard work to all those involved in setting up the study.