Euro Ewing Consortium

International Clinical Trials to Improve Survival from Ewing Sarcoma


Additional funding to EEC Partners for translational research

The EEC has awarded an additional €50,000 to each of three EEC Partners to carry out further translational research. The EEC are grateful to the External Advisory Board and EEC patient advocates for providing the peer review for the call.

The successful applicants and their projects are:

Heinrich Kovar
Pre-clinical validation of Verteporfin to prevent metastatic spread of Ewing sarcoma

Susan Burchill
Functional biomarkers that identify Ewing’s sarcoma patients at increased risk of relapse

Didier Surdez
Circulating tumour DNA based analysis of poor prognosis secondary mutations in Ewing sarcoma

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Young Researcher travel awards - deadline 16 September 2018

The EURO EWING Consortium (EEC) has launched a call for applications from junior researchers to attend and present at the next EEC meeting. This will be held in central London on 11-12 December 2018. The call is open to junior scientific and clinical researchers (i.e. not holding substantive career posts) working in Europe on Ewing sarcoma at both EEC Partner and non-EEC Partner organisations. Funding has been generously provided by the Peter Pan Onlus charity in Italy.

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EEC Meeting June 2018

The summer EEC meeting will take place on Wednesday 13 June 2018 in London, starting at 10am and finishing at 5pm.

The meeting will focus on European Ewing sarcoma clinical trials.

09:30  Registration, tea, coffee and Danish pastries
10:00  Welcome and introductions
10:05  Presentations: Collaborative opportunities for trials in newly diagnosed Ewing sarcoma
11:55  Coffee break
12:15  Round table discussion: Collaborative opportunities for trials in newly diagnosed Ewing sarcoma
12:45  EEC Council
13:25  Lunch
13:55  Biobanking
14:35  Evaluating new agents: rEECur
15:35  Evaluating new agents: other studies
16:00  Close of meeting, tea and coffee available

Registration will close on 30 May 2018. To register, contact eec@ucl.ac.uk.


William Penn room, Friends House, 173-177 Euston Rd, London NW1 2BJ

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SPAEN Conference Report 2018

The report from the 8th SPAEN Annual Conference held in Milan, Italy is now available. The conference was held in conjunction with the ESMO Sarcoma & GIST Symposium.

The report includes a summary of all the sessions, the Advocacy in Action Award 2017 and the SPAEN Roundtable during the ESMO conference and more.

Photos and presentations from the conference are available from the SPAEN website.

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Ewing Spring Meeting 12-13 March 2018, Essen

From noon, 12th March to noon, 13th March.
Venue: University of Essen Campus, Hohlweg 8, 45147 Essen , Room 43.0.026 (ground floor).

Any additional correspondence regarding organizational issues should be directed to ewing@uk-essen.de.

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Musculoskeletal Pathology Course 2018 - 16-20 April 2018 Bologna

The course consists of a 5-day update on management of bone and soft tissue tumors with particular emphasis on clinico-pathologic and radiographic correlations including practical studies under microscope. It is addressed to orthopaedic surgeons, oncologists, pathologists, radiologists and basic researchers to improve their knowledge and competence in these pathologies by working in multidisciplinary teams. The format includes interactive sessions for questions, case presentations and an early morning interactive session of multiple choice questions reviews the topics previously discussed. The last day participants are grouped in multidisciplinary teams to discuss a clinical case. The best teams are awarded a prize. Register at  http://www.adarteventi.com/

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Paper published in JCP by Ornella Gonzato, EEC patient expert

Ornella Gonzato, an EEC patient expert based in Italy has written a paper  called ‘The new risk-sharing paradigm in rare cancers: Patient perspective’ and was published in the Journal of Cancer Policy in March 2017. You can access the paper from the EEC News and Events page.

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Kieran Maxwell

We are very sorry to hear that Kieran Maxwell, a brave young man who was first diagnosed with Ewing sarcoma six years ago has passed away. Despite losing part of his leg and having relapses, he competed as a gymnastic and an athlete, as well as raising funds and awareness of Ewing sarcoma. In Kieran’s words, “I did everything I could to live life to the fullest.” Our thoughts are with his mum Nicola, who has been a great supporter of the EEC, and his family and friends.


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Donation from Associazione Paola per i tumori muscolo-scheletrici charity

The EEC is very grateful to the Associazione Paola per i tumori muscolo-scheletrici charity in Italy for their donation of €5000. EEC Partners have put forward some ideas on how the money could best be used and suggestions include supporting sample collection, analysis of samples and supporting young Ewing sarcoma researchers. A decision will be made early in 2017 on how to use the donation. The Associazione Paola per i tumori muscolo-scheletrici charity was set up in memory of Paola Gonzato.

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Funding available to young researchers to present at EEC meeting

After the success at the summer meeting, the EURO EWING Consortium (EEC) is again launching a call for applications from junior researchers to attend and present at the next EEC meeting. This will be held in central London, 18-19 January 2017.

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Next EEC meeting

Wednesday 13 July at the EORTC, Avenue Emmanuel Mounier, 83/11, Brussels 1200, Belgium. Agenda to follow. Starts at 10:00, ends at 16:30.

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EEC Patient Expert representation at the Childhood Cancer International conference – April 2016

Chris Copland, a patient expert from the UK represented the EEC at a European-wide conference organised by Childhood Cancer International (CCI) which is an international patient support organization for childhood cancer. Chris has written about his experience at the conference.

The Childhood Cancer International (CCI) European conference, this year in Belgrade, was, as always, a very worthwhile event. I had the opportunity to present a poster there about the EURO EWING Consortium and distribute a corresponding set of leaflets. With companions from Unite2Cure, I presented on the campaign to reform the Paediatric Medicines Regulation as it approaches its 10 year review. One of the examples we gave of how the Regulation fails children with cancer was the cancellation of a Paediatric Investigation Plan into the benefit of an IGF-1R inhibitor for children with Ewing sarcoma after the corresponding trial in adults had failed. On the final day, a film was shown about the youngest beekeeper in the Netherlands, a young girl who also happened to have bone cancer. Do spare fifteen minutes to watch this uplifting film. You can read my full blog on the conference and read the official Unite2Cure report.

Chris Copland, EEC Patient Expert (UK)

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